Sunday, January 31, 2016
There has been a new discovery in the diabetes community that has been spreading like wild fire. Bath and Body Works stores have designed and are selling these new cases to hold their soap dispensers. However, those of us that have children that carry CGM's (continuous glucose meters), have discovered that these fun new cases work for these too!
Prior to this discovery, the only choice was the plain business man black leather case that comes with them. When I visited the store the other day, the only two choices that they happened to have were blue and glitter clear. Perfect for us as I needed one for a boy and one for a girl!
The kids have been having fun carrying them around now!
Thank you Bath and Body Works! (Even though, I don't think they know yet what we have all figured out)
Thursday, January 28, 2016
our sweeties helped to make a sweet of homemade fudge to fundraise for their big sister that needs to pay to go to outdoor education in the Spring. This is a required camping trip by the school that has the students go to cabins with their teachers and they learn all kinds of neat outdoor activities and education to bond as a group for several days, to get ready for middle school the next year.
Each family must pay for their child in addition to school tuition.
We made fudge and sold at a school fundraiser last weekend. We still have more fudge!
It is delicious and we can ship!
We are selling each package for $3 each.
please help us send the sweeties big sister to outdoor ed!
please email me at firstname.lastname@example.org, if you can help us!
We started our morning with pancakes. He started his day at 81 which is great. However, going to school, I wasn't sure how much insulin to give him to go with the pancakes when he was already under 100. I knew that I didn't give him enough insulin and planned to give him more at school to be safe.
Then I couldn't find my car keys. I still can't find my car keys. This delayed me. My husband finally came back home and gave me his key for my car. I packed up the baby and headed to my son's school to check him. By now, the teacher was texting me that his cgm was alerting that his blood sugar levels were going up. I figured.
When I arrived at school, His meter said he was 540!!
I quick gave him a lot of insulin. I even rounded up a bit because he had started to eat a cracker before we knew he was that high. But then he didn't want to eat and he was just thirsty. Of course.
I went and got him a water bottle and let him drink that. Then I waited and checked him in a bit and he was already down to 440. I left and went to check on my daughter with diabetes and then came back to see how he was doing. He was now down to 330 and still had a lot of insulin on board.
Now I was worried. It was great he was coming down but he was coming down really fast and I couldn't leave him. I quick took my baby to my mom, so he could play, and then I headed back to my son. By the time I rechecked him, he was now 179.
He still didn't want to eat anything so now I was just worried he was going to go low at some point.
I hung out while he cycled through the centers in the classroom. I learned about needs vs wants and some history lessons about how people used to get their food and water.
I had watched the clock move slowly while waiting and finally it was lunch time.
He was 97 heading out to lunch and I sat with him at the picnic table. What I had been waiting for, finally happened. He began to yawn as he took bites of his apple and then laid his head down on the picnic table. Another student came over and asked how he was doing. When I checked him, he was 55. and still going down.
I gave him a juice and meanwhile, he slumped down on the ground and laid his head on the bench. I kept talking to him and got him to drink another juice. He still acted low and ravenous. I rechecked him and his meter said 79 yet he still acted low. My mom had given me a jar of frosting, just in case. He wanted some. So I let him eat some and pretty soon he was just eating from the jar, unaware of anything going on around him. He had frosting all over his chin and cheeks and shirt. I checked him again and he was now 90. I took the frosting and told him that he was okay now. He ate a little of his lunch and then lunch was over. It was time to line up.
He was now okay.
I was ready for a giant vanilla latte.
The book we read last night that inspired the pancakes, that lead to not enough insulin, that lead to too much insulin, that lead to a low low, that lead to lots of frosting and juice, that lead to an emotionally exhausted mama...can you guess?
Thursday, January 21, 2016
He has had a cool bag in the past that neatly tucked his pump inside and he wore the bag around his waist. But at some point over the last two years, he took off the bag and never put it back on. In the meantime, he clips his pump on his pant waist.
This worked for awhile. Until he discovered that the pump is actually really cool to play with. He discovered he can fiddle with the grommet on it and the tubing attached to the pump can make a great lasso. Hence, I will see him coming out of his room, swinging his pump like he is ready to saddle up and head to town.
He tried this cool trick at the doctor's appointment with his endo and she was not amused to say the least. In fact, she reminded him that the pump could be replaced with multiple shots again everyday if he didn't keep that pump on his waist, where it belonged.
He may enjoy the challenge of playing standoff with his doctor but I do not want him to return to shots. So, I began my search for a cool new bag for him. Something that he might be willing to wear again. I found this pokemon bag! One of his new obsessions is pokemon. The kids found their big sister's collection from years ago, one day, and ever since, all they want to do is collect pokemon cards and organize pokemon cards and trade pokemon cards.
I was so excited to show him this new bag that I went running into his room and interrupted a pokemon trading session to show him the photos. He agreed. He liked it.
We ordered it. and here it is. He is still warming up to the idea of wearing it but it was handsewn just for him per his request to have Bulbasaur and Charmander on the front. It is a small victory in the diabetes life, when we see something cool for a precocious young boy that has to deal with such unfair medical dealings in life.
thank you www.toosweetboutique.net
if you would like to order a hand made bag for your child living with type 1 diabetes or even bless a friend, the wonderful owner who makes each bag with love, will offer a 10 % discount on any purchase made by 1/31/2016 if you mention my blog with the code: JRichardsBlog
it's all about the silver linings
Monday, January 18, 2016
Notice my sweetie in the front here of the photo is only half smiling. She is normally full of energy and smiling and talking. But not this day. As we were driving over for lunch, she was quiet. When you have a child with type 1 diabetes, when their behavior seems different than normal for them, we worry.
When we arrived at the restaurant, I checked her blood sugar levels. She was low. This means she was under 70. she was 68., Not too bad, but low. I gave her a juice box to drink as we went into the restaurant. She didn't really want to drink it and complaining how big the box was. It wasn't big and that again, seemed strange. She drank over half and sat quietly at the table. Her blood sugar levels came up just enough that she was over 70, so I let her just sit.
The food arrived and everyone began to eat. She began to pick at her food and took a few bites. I kept watching her not sure how she was doing. My mom came over to sit closer to me and began telling me about new landscaping she wanted to do. I could only half listen as I kept watching my sweetie.
I finally asked her if she was feeling okay and if she needed to go to the restroom. Do you want to guess how the story ends?
I ended up taking her home early after she had gotten sick just outside the restaurant.
This happens. It happens to kids and adults. But when it happens to someone with type 1 diabetes, we have to keep checking her blood sugar levels and making sure that she doesn't go dangerously low. It is not uncommon for children with type 1 to get the stomach flu and end up in the hospital due to dehydration and unable to keep their sugar levels up and then they start developing ketones.
Lucky for us, after we got home and cleaned up and got comfy on the couch, that was the end of it for that day. She recovered and was able to drink some soda and later some crackers and then some food.
Wednesday, January 13, 2016
I have been working directly with the teachers of my kids but the rest of the school staff hadn't seen much of what we do everyday. So, I was given the privilege of educating the entire staff about diabetes and the care that the kids require.
The meeting ended up being blessed. It wasn't a dry, informative, mandatory educating time. It ended up being very interactive and the staff was very responsive. There were many questions and comments. I brought in many items to show what we used to manage their diabetes. I discussed their pumps, needles, insulin, sugars, and cgms. Questions led to conversations about how was it to accept a diagnosis as a parent? Will we ever get to sleep through the night again? What are signs of them having low blood sugars? and where is the positive in all of this?
I found myself coming to tears as someone asked the last question. Because, WHERE is the positive in all of this? not only ONE child, but two! Is there any positive? well, after I thought about it and a teacher in the meeting took a moment to reflect while I composed myself. I said that I wouldn't not have any of my children. If I knew that they would have developed diabetes, would I have decided to not have all of these children? no. Our second child's name means "God has heard our prayers." We prayed for each of our children and even with my last child that brought on heart failure in me, I still am thankful to have survived and have him today.
The silver lining in living with problems: is that we all have problems. Some have different names and diagnosis. We all struggle and are sad and some days happy too! God is the problem solver for us and can show us blessings through our perseverance. God has opened my eyes to childhood illnesses that I never knew about before and shown me how precious life is. We take life for granted until we realize that life is a gift. Every life. Every child. And sometimes we need those reminders.