Our sweetie pies

Our sweetie pies

Sunday, February 7, 2016

wearing red and heart failure


Here is my helper.  He blogs for me when I am busy. :)

February is the month to bring awareness to our heart health.

This is a perfect month for this as we are already buying chocolates and cards to express the love spilling over from our hearts.

Just like type 1 diabetes, I also knew nothing about cardiomyopathy.

my little guy is now 16 months old and the end of my pregnancy led to me learning all about heart failure:

When I showed my obgyn, my swelled ankles, he said that it was hot that day and typical in pregnancy.  I had never had swelling in pregnancy before, though.

When I said that I couldn't breathe or lie down after I had delivered my baby, the doctor thought that I was suffering from anxiety or needed more sleep.  They even ordered a walker for me to just get out of bed!

x-rays finally revealed fluid in my lungs.  pneumonia was diagnosed, yet that didn't feel right to me.

The doctor decided to order an echocardiogram, just in case.  heart trouble was unlikely and rare for someone like me.  I was only 41 and healthy.  no high blood pressure or health problems prior to this.

yet, my echocardiogram proved invaluable.  my heart was too large and leaking.  I always hear the narrative from The Grinch who Stole Christmas where it was a good thing that day that the Grinch's heart grew three times its size.  For the Grinch it was a good thing.

But in a hospital, in real life, this was very bad.

I was in heart failure.  diagnosed with cardiomyopathy.  then they sent me home a few days later, thinking I would be okay.  Because I was naturally thin, my extra 30 pounds of fluid looked normal to the doctor.

I replay that night at home, in my mind over and over.  I am so lucky I survived that night.  I  couldn't breathe or even sit comfortably let alone lie down.

I had my husband take me back to the hospital, the next day where from the emergency room, I was admitted to the cardiac floor.  A heart monitor was clipped on me and I was now an official heart patient.  Two weeks later, I went home after an angiogram, lots of medication and thirty pounds lighter.

I survived.  Just as my children with type 1 diabetes survive.  We are survivors.

Take a moment to educate others on what life really is for those of us living with diseases.

Be thankful for those that don't have to.

just be thankful.

and eat some chocolate.  

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