just an update...

so the other night, we went in to check her again and found out that she was 78. she was sound asleep and sweaty and when I lifted her hand to check her, she was shaky. I was able to get her to drink some apple juice from a straw in a cup balanced next to her, snuggled in bed still.

she then came back up to 111. I then tried to get her to drink some milk to get her back up a bit higher for the rest of the night, but only succeeded in getting her to drink about a third of a cup. she did make it through the night at about 160.

we are starting to see lows again due to the adjustments that were made....

we are completing testing for her right now for her speech services. she hasn't been progressing as her brother is, so we are looking at any other areas that she may need support in too. so far, the vocabulary assessment determined that she has the vocabulary of a ten year old. hmmm.

"slow to speak, yet quick to listen" that was the first thing that came to mind.

so we shall see what is to come...

I was inspired by a woman that I recently read about that shares her story about her twins that were in the NICU at birth and how now she encourages others.

Then I thought about how many stories I am able to tell.

We have had preemie twins, a daughter in a body cast due to a broken femur bone, and now a little one with type 1 diabetes.. I think I am going to start working on a book telling our story of those three incidents to encourage others that face medical challenges with their children. If we survived three, then others can survive one or more too!

c'est tout pour maintenant...as I used to say

many things to come